The stigma, anxiety, and unpredictability that come from herpes can make living with it a challenge. For some individuals, managing this medical condition on their own may appear impossible. But it doesn’t have to be that way. Herpes support groups provide an easy and accepting forum to share stories, access information, and interact with people who truly empathize. Whether you are newly diagnosed or have been coping with herpes for years, these groups offer the understanding and tools needed to succeed.
This blog discusses the usefulness of participating in a herpes support group, the various types of groups available, and how to join one. If you are looking for a way to better educate yourself and feel empowered yet less isolated, keep reading.
The Benefits of Joining a Herpes Support Group
The impact of herpes goes beyond physiological; it also encompasses the psychological, emotional, and social realms. This is where support groups get important. Their aim is to empower people and provide them with genuine encouragement. Consider some of the advantages of joining a herpes support group:
1. Emotional Support
You need not shelve your emotions anymore. Support groups for herpes allow you to process emotions in a safe space that is free of judgment.
Listening to other people’s stories can serve as a reminder that you are not alone. Whether you are anxious about dating, working through self-esteem issues, or coming to terms with a recent diagnosis, these groups have people who truly understand.
2. Social Connections
Creating friendships is one of the most enjoyable parts of joining a support group and ex-cancer patients report feeling isolated. A support group changes the narrative. You will meet others who understand your struggles and who can also celebrate your successes. These communities tend to build friendships that go beyond the boundaries of the group and turn into lifelong friendships.
3. Accurate, Reliable Information
Are you confused about how to manage your outbreaks or worried about how to bring up the subject of herpes with a partner? Support groups are full of helpful information. Many are run by a healthcare professional or an experienced member who will answer your questions and provide helpful materials. Think of it as a mix of practical advice and supportive guidance from someone who has traveled the same journey.
Support groups provide information and allow participants to share experiences, fears, and feelings with others who are concerned about herpes.
If you’re looking for support, Feel free to join thousands of others who are part of ASHA’s STI support forum hosted through Inspire.com. online (free registration required). This forum allows users to post and interact with others but that’s not necessary to participate: You can simply choose to search the hundreds of discussions covering STI topics such as testing, treatment, transmission, and talking with partners. Note that the forum doesn’t offer direct medical advice or opinions regarding symptoms (we can offer referrals to a free clinic, though, no problem).
The groups listed here are not sponsored or endorsed by ASHA, and are entirely responsible for their activities and the content of their websites.
Online Support Communities
Something Positive for Positive People (SPFPP)
SPFPP offers dedicated support for both men and women, providing a space where you can talk openly about your experience, heal emotionally, and connect with others who understand. Whether you’re seeking individual support or a group setting, SPFPP offers resources to help you navigate herpes stigma, disclose your status with confidence, and reclaim your sense of self.
Honeycomb Support Forum
This is a discussion forum for people affected by herpes simplex virus (HSV) with more than 70,000 members where you can talk openly and honestly. If you’ve been feeling afraid, alone, isolated or confused prepare to feel a whole lot better. You are among friends here and our support crew can help you realize just how normal and common this skin condition is.
The STI Project Private Facebook Group
Support group helping people with HSV break through fear, shame, & stigma! If you feel overwhelmed about having herpes, or simply, you’re stuck wrestling with the immense stigma that comes with a herpes diagnosis, then you’re in the right place!
United States
Below is a listing of local support groups in various states in the U.S. You can also search MeetUp.com for more herpes support groups and meetups in your area.
CA
Bay Area Friends
San Francisco, CA
www.bayareafriends.org
Bay Area Friends Meetup
IN
Indy HELP
Indianapolis, IN
www.indyhelp.com
MI
Metro Detroit HELP
Detroit, MI
https://www.metrodetroithelp.org/
Canada
ON
Toronto HELP
c/o The Phoenix Association
Toronto, ON
(416) 449-0876
www.torontoherpes.com
Last update: 04/2025